Holiday Inn, Johnson City, TN

Holiday Inn, Johnson City, TN

Holiday Inn, Johnson City, TN

This is the Holiday Inn, Johnson City, TN 2/25/23
Greeted with a smile and welcomed us. When we asked for a specific room, the front desk assistant said “We don’t usually put dogs in that room.” When we said we’d had that same room a week before, she stated “No problem. I am happy to get that room ready and let you stay there.” No fuss, no muss. It was a big room, the door was easy to open. Wide enough for the wheelchair to go through, and a roll in shower made it easy to get cleaned up.

Holiday Inn, Johnson City, TN

 

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Disabilities and The Starbucks Incident

Disabilities and The Starbucks Incident

The Starbucks Incident

Dr. Keith McNally served as a United States Marine in a combat situation – thus, he is a USMC Combat Veteran. By fortune, he does not have a service-related disability as others who have served in the United States Armed Services. This is not his story.

But this could be your story. Or the story of someone you know.

As reported…

An interesting statistic. According to the United States Census Bureau (source below), those who served (or are currently serving) in the United States Armed Forces since the 9/11/01 terrorist attacks in America have the highest rate of services-related disabilities. This comes to a staggering 1.5 million people.

Although the number of service-related fatalities has declined, the number of service-related injuries has increased. This means there are more veterans with service-related disabilities when comparing pre- and post-9/11.

Additionally, veterans who served since the terrorist attacks have a higher probability of incurring a service-related disability (the article is not clear on the reason for this occurrence).

Comparing the rate of service-related disabilities among Post-9/11 veteran statistics with other war and conflict situations:

  • Veterans Post-9/11: 43%
  • Veterans of the Gulf War: 27%
  • Veterans of the Vietnam Conflict: 16%

In this sense, a veteran is said to have a service-related disability if the individual incurred an injury or traumatic event while in service to his/her country. Although we typically consider this as obvious physical injury such as the loss of a limb or one of the five senses (sight, hearing, smell, touch, and taste), the disability or trauma could be psychological or psychiatric in nature. This includes cases where veterans incur symptoms associated with Post-Traumatic Stress Disorder (PTSD), Anxiety Disorder with Panic Attacks, and the like. Veterans with psychological and psychiatric disabilities are on the rise since the 9/11 terrorist attacks.

Source: https://www.census.gov/library/stories/2020/06/who-are-the-nations-veterans.html

On with the story…

A man was sitting in his vehicle at a local shopping area. His car sat in the second row of the parking lot facing the storefronts. It was mid-morning, Saturday, and he was on his cell phone. A large pickup truck pulled into a parking spot in front of him, to this left. It just so happened to be a spot dedicated to the disabled. The man driving the truck parked and got out of his vehicle.

Soon, the man was approached by another man, equal in height, but probably twice his size, most of that muscle. As the man in the vehicle watched, it was not long before he realized what was going on. He told the person on the other end of the cell phone conversation that he had to go. Exiting his own vehicle, he walked over to the two men by the pickup truck.

Sizing them up, the man who pulled into the parking spot was easily six feet tall. So was his confronter.

“What makes you think you can park in this spot?” the big man said. The man’s voice was angry, even to the point of bullying. It looked as if he was about to put his hands on the driver of the pickup truck when the man from the car arrived on the scene.

“Hello gentlemen,” the third man said. “How is everything this morning?”

“This man is parked illegally and needs to be taught a lesson,” the big man said. “I don’t see any handicap.”

The man from the car pulled out his badge and showed it to the two men. “I’ll take it from here,” the officer said.

The big man, still angry, was not easily persuaded to leave.

Validating Your Story

“I’ll take it from here,” the officer said again. He waited until the big man walked away.

“Thank you, officer,” said the man who drove the pickup truck.

“I am going to have to see your driver’s license and registration,” the officer said.

“What for?” the man said. “I didn’t do anything wrong.”

“Routine,” the officer said. “We have people in the area who carry these rearview mirror signs pretending to be disabled. I just want to make sure.”

“Does this look like I’m pretending?” the man said as he pulled up one of his pant legs. The man was showing the officer his prosthetic leg.

“Your license and registration please,” the officer said. “Just to be sure.”

The man climbed into his truck and dug for his registration in the glove compartment. Then he pulled his license from his wallet.

While the officer checked the validity of the driver’s credentials, the driver of the pickup grabbed his cell phone and made a call. When the officer returned, he asked the man to step out of his vehicle.

“Here you go,” the officer said, handing both the license and registration back. “Your bumper sticker reads Special Forces. Where were you stationed?”

“Fort Bragg, North Carolina,” the driver said.

“My cousin was stationed there,” the officer replied.

“Does everything check out?” the man asked.

“Absolutely,” the officer said. “But now I’m curious. How did it happen?”

“My leg?” the man asked. “That’s a story.”

You Are Not Alone

“I’m sure it is,” the officer said. “But I collect stories. You see, my cousin died. We were told it was a ‘training accident’. It might have been, but we’ll never know. Since then, I have been researching the people who have died in ‘training accidents’ while in service to our country. I have five stories so far. I would like to know your story if you have time.”

“Sure,” the man said. “Why not?”

“Great,” the officer said. “Let me buy you a coffee.”

On With Life

Disabilities are not always obvious. In fact, some are hidden in plain sight. When meeting someone for the first time, or even seeing someone over the course of years, you don’t know what they are dealing with or what they’ve been through. But it’s easy to paint a picture of them just by what you see. Often, that picture is wrong.

Invisible disabilities are just that – invisible. Someone has suffered something, but that something is not common knowledge. As the saying goes, don’t assume, and don’t judge.

And think before you speak.

Thanks for reading!

 

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Disabilities and The Starbucks Incident

 

 

 

 

 

 

Are You Invisible?

Are You Invisible?

Becoming Visible – the Invisible Warrior!

Are you invisible? 

If you live with chronic pain for whatever reason, and life seems to be fighting against you every step of the way, then you may be invisible. Being invisible means no one is there to help, support, and aid you because no one sees you. And no one sees your pain.

Millions of people live their invisible lives; millions of people live with chronic pain and disabilities. Many are discriminated against in ways with which you might not be familiar. Even though (Federal and State, USA) laws are there to protect those with disabilities, certain industries do not comply with such rules. Even worse, people discriminate against other people.

On Becoming Visible 

If you were to have a conversation with Nancy Becher, your heart would melt.

Talk with anyone with chronic pain, and they will tell you a story. Depending on how the individual copes with the pain daily, that story can have different endings. Most of the time, you will learn three things: when it all started, the complications that resulted, and the multitude of medical professionals who got involved. If you dig a bit deeper, you may also learn that doctors – i.e., medical professionals – may not always believe you.

You read that correctly – medical professionals may not believe your story.

Today, I will tell you about one such story.

Meet Nancy Becher

Nancy and I engage on LinkedIn regularly. As with most things, engagement was slow in the beginning. But I understood Nancy’s passion for others. I connected with her mission – let’s get the word out about those who suffer chronic pain. These people are often overlooked by medical professionals, especially when the source of the pain cannot be easily or readily identified.

Yes, there is an origin story. There is always a Genesis. There is always a point in history where we can say, “yes!” This is when it all started. But chronic pain? Can pain last beyond the healing? These are good questions. However, I do not know the answers. I only know the stories that people tell me.

This is One of Those Stories

“Hello, Nancy,” the doctor said. “What brings you in today?”

Nancy sits in her wheelchair in the doctor’s office. This is a new referral. This is the first meeting between Nancy and the medical professional. Due to struggles with insurance providers, Nancy faces the continual challenge of receiving the appropriate medical care for her needs.

“Doc,” Nancy begins. “I’m in pain.”

Nancy, once again, offers the medical professional a brief backstory and then tells him, “I have Complex Regional Pain Syndrome.”

“You’re lying,” the medical professional follows, “I have never heard of such a thing.”

People, such as Nancy Becher, who live with chronic pain face significant life challenges. Besides the internal struggles they face each day – literally wanting to get up and out of bed knowing that this day will be difficult to cope with emotionally, psychologically, and physically – people with invisible illnesses face socio-economic and other real-life struggles.

Looking back at the conversation with her doctor, how insulted would you feel if your medical professional told you that you were lying about your illness or condition? Surely, the conversation would go south from there. No need to explain the symptoms or problems. You first have to convince the doctor that you’re telling the truth.

Doctor, Meet Google

Let’s set the facts straight.

Complex Regional Pain Syndrome is “a chronic condition that causes long-lasting pain. Normally, pain is short-term and resolves as the body heals. But with this condition, pain doesn’t fade with time. Instead, ongoing pain might get worse instead of better as days and weeks pass.” ~ Hopkins Medicine

People with chronic pain and invisible illnesses embrace stigma, financial challenges, loneliness and isolation, and even suicidal thoughts and ideations on a regular basis. This is not quite the incentive you want to have waking up every morning.

Nancy’s Story

Nancy Becher is the founder of Invisible Warriors, a nonprofit organization focused on providing support and guidance for those who suffer from invisible illnesses. Additionally, she is on a mission to change the stigma associated with illness and disability. With the right support from her community, she also wants to change the way our (USA) federal government creates policies that help people with disabilities.

Nancy has a Master of Science degree in Counseling. Additionally, she is working toward her doctorate in Sociology. In 2022, she studied with Ministry with Disabilities. She is currently working toward her certification. She continues to exemplify the true nature of a life-long learner.

Her Life Changed in 2014

Picking up her parents from a senior center potluck dinner, Nancy was hit by a driver at the event. When the two cars collided, she was knocked from her vehicle, landing in a drainage ditch. Her body was twisted from the impact. As the ambulance came, Nancy could do nothing but writhe in pain and hope for the best. The best never came. No doctor could pinpoint any severe injuries aside from the cuts and scrapes associated with the impact on the ground. It took multiple doctors and many months before a medical professional had the insight to scan her body using an MRI (Magnetic Resonance Imaging).

Nancy was diagnosed with torn tendons, ligaments, and broken bones. This was five to six months after the fact, and by then, the permanent damage to her body had been done.

With surgery, some of the physical injuries were amended, but the pain continued. Eventually, a doctor diagnosed her with ‘Complex Regional Pain Syndrome’ from the prolonged nerve damage over those many months without proper medical care.

Often called the ‘suicide’ disorder, Nancy now faced new problems. How would she exist? What would she do now? How would she cope with the pain? What would prevent her from taking her own life?

Nancy was Determined to Live!

Since then, Nancy has undergone 16 surgeries and two spinal stimulators. She has met with countless medical professionals to find a way to deal with the pain. At this time, there is no solution. But there is hope.

Nancy organized and created Invisible Warriors, a 501c3 non-profit, to help others who are going through similar mental and physical journeys. It is her passion to support others while making it her mission to dialogue with medical professionals. Additionally, she continues to lobby for changes in the insurance, pharmaceutical, and travel industries so that women with hidden chronic and autoimmune disorders can begin to feel that they are not alone.

You are NOT invisible.

Thank you for reading!

Guest post by Dr. Keith McNally

Get involved! Click HERE to get started.

Are you looking for support?

Invisible Warriors is here to help! Check out our growing list of resources by clicking the button below.

Are You Invisible?

Invisible Warriors

Chronic Illnesses Can Be Disabling

Chronic Illnesses Can Be Disabling

I’m so tired. I feel like I’m walking around in a deep London fog. My legs are heavy and hurt if I move them. I think I should probably just stay in bed. But, wait. I hear the kids chiming in that they’re hungry. My husband keeps opening the bedroom door to see if I’m awake and getting up anytime soon. The phone alarm is going off telling me someone is trying to text me or that I have an appointment coming up. I guess I need to get going.

Ever felt like that? Do you tell yourself you’re being lazy or find yourself wondering what’s wrong? Things like that never used to be a problem. But chronic illnesses can be disabling.

It gets to a point where you finally decide to call the doctor. You can’t go on with the pain, the exhaustion, the body parts not working the way they should. You need to know what’s happening. So, you pick up the phone, make an appointment, and eventually get in to see the doctor. Yet more than likely, the doctor tells you s/he needs tests, x-rays, blood work, or worse, that you’ll be just fine – go home and rest a few days and you’ll be all better.

But that doesn’t happen. The tests often show nothing, and the doctor writes on your chart things like, “patient needs to lose weight,” or “patient is exaggerating symptoms,” or … on and on.

I get it. I’ve been there.

Five months and six doctors after a hit and run car accident, I finally got a diagnosis of broken bones plus torn ligaments and tendons. They immediately (finally) decide they need to operate to repair those injuries, leaving me with more pain,  only to later tell me, “Oops, you now have something called Complex Regional Pain Syndrome, sometimes called RSD.”

A 2018 article by Johnson and Johnson talks about someone that could very well have been me, but wasn’t. However, the story fits. She was in a car accident and developed reflex sympathetic dystrophy (RSD), a rare disorder marked by severe pain. It took 43 doctors and three years before she was properly diagnosed. By that time, she was so debilitated that taking a shower felt like “a million sharp needles” on her body, and she was sleeping more than 20 hours a day.

What is a chronic disability?

Complex regional pain syndrome is just one of hundreds of chronic disabilities. The Centers for Disease Control (CDC) defines chronic illness as: conditions that last one year or more and require ongoing medical attention or limit activities of daily living or both. Based on this definition, it’s clear that invisible chronic illnesses can be disabling.

Yet, because many of these disabilities are hidden, too many people don’t believe they exist. They don’t understand them, and they feel afraid that they may wind up getting something (is it contagious?). So, the topic is often taboo and as a consequence, when people do find themselves in a situation where their health limits their lives, they either ignore it or succumb to the mental challenges that are also inherent.

Pain is one of the major components of most of these disorders and pain wears down a person’s mental stamina. Recent statistics (Orlando Health) have stated that having a chronic disability increases the chance of attempted suicide by over 363%. The cycle goes like this (especially for women):

  1. Find yourself with a chronic disability
  2. Lose your job
  3. Lose your income and insurance
  4. Lose your spouse or significant other (because they no longer have the spouse they used to have)
  5. Become homeless
  6. Sink into depression and often drugs
  7. Attempt suicide

We must stop this cycle.

It’s going to take a lot of education, training, and uplifting of the people with the disabilities. It will take people believing in them, and doctors trying to find the answer, not just saying to live with it, that  it will go away. It will take the community that should best understand disabilities to stop saying invisible illnesses and disabilities are not part of the disability world. They need to acknowledge that chronic illnesses, especially invisible ones, can be disabling. And so much more.

Will you join us and support the process? Help the invisible warriors get out into the battle and win the war.

Contact us HERE. Or support our 501(c)3 with a donation HERE.

Are you looking for support?

Invisible Warriors is here to help! Check out our growing list of resources by clicking the button below.

Chronic Illnesses Can Be Disabling

Invisible Warriors

Come to the Table December 2022

Come to the Table December 2022

Come to the Table December 2022

You are warmly invited to join our monthly event, Come to the Table, on Wednesday, December 21, 2022, at 12:00 ET/11:00 CT. Each month, you can join this peer support group where women feel loved and supported, valuable and worthwhile.

Special guests, discussions, and training on having chronic and autoimmune disorders provide a sense of not being alone. We talk about all things life and chronic, but in a kind and uplifting way — never moaning and groaning.

Special Guest

When you have an autoimmune disease or chronic illness, you try all kinds of things to feel better.

You may take medications, receive therapies, or even require surgery. All of these things are important BUT often do not address the root cause of our health issues.

One thing that is often overlooked when it comes to improving chronic health conditions is the role of diet. And even if you do take the time to consider diet, it can be very confusing.

In this month’s Come to the Table, Certified Nutritional Practitioner and Autoimmune Health Coach, Whitney Coupland will break down how diet helps us heal from chronic illness. She will also introduce a way of eating that has helped thousands of people turn their health around, despite having chronic health conditions.

Whitney Coupland is a Certified Nutritional Practitioner and Life Coach. In her online coaching practice, Whitney works with those who want to improve their health while still enjoying their life. You can connect with Whitney by booking a free consultation, or finding her on Instagram @WhitneyCoupland_. She also has a free course called EAT to HEAL. You can get access to it HERE.

Click HERE to register for Come to the Table December 2022 and be inspired!

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Come to the Table December 2022

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