April 2023 Lunch and Learn

April 2023 Lunch and Learn

Huntsville Invisible Warriors Lunch & Learn

Suffering from a chronic illness, invisible disability, or autoimmune disorder and living in Huntsville, AL? You’re not alone.

On the 4th Tuesday of each month, join a local Invisible Warriors peer support group for a Lunch & Learn at The Curry in Huntsville. Be a part of this safe space where women feel loved and supported, valuable and worthwhile. We talk about all the things life throws us, but in a kind and uplifting way — never moaning and groaning.

Each month features a different special guest and discussions and training about living with chronic illnesses and autoimmune disorders. Our April special guest is Amarie Whetten who is focused on creating optimal metabolic health using an intermittent fasting and fiber protocol, The Feel Great System. She used this protocol to drop two dress sizes in a couple of months and normalize triglycerides.

Amarie has been a wellness educator and business builder for a decade. She’s a chemical engineer with a technical career by day and has lived in Huntsville for four years with her husband of 21 years and four kids ages 6, 12, 15, and 17. Connect in person or follow her on TikTok or Facebook.

Space is limited. Your kind donation of $30 includes your meal. Click the link to register and reserve your seat: April Lunch & Learn

See you there!

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April 2023 Lunch and Learn

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Holiday Inn Nashville-Vanderbilt

Holiday Inn Nashville-Vanderbilt

Holiday Inn Nashville-Vanderbilt

 During our first stay, we had a bit of a rough start with the Holiday Inn Nashville-Vanderbilt. At first, they put us in such a small room that the wheelchair had to stay in the hallway outside the door. However, when we spoke to them about it, they then made sure we got a great room and even paid for an extra night to make up for the issue we had.

We’ve been back to this hotel to stay several times. It’s located in downtown Nashville near Nashville’s Music Row (they have songwriters performing live nightly) and is central to many attractions in the area. When we arrive, they always greet us and make us feel welcome. They also give us the same accessible room each time, as long as we ask in advance. I find it easy to get around this hotel in my wheelchair, and we always feel welcomed and like we’re not a burden on them. I especially appreciate that this hotel is pet-friendly so my service dog, Warrior, can stay with us.

For all the comforts of home and their attention to detail to make traveling easier and enabling Invisible Warriors to thrive, not just survive, we are pleased to honor the Holiday Inn Nashville-Vanderbilt as a Hotel Hero!

 

Holiday Inn Nashville-Vanderbilt

 

If you know of another Hotel Hero, click here to nominate one!

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Holiday Inn, Johnson City, TN

Holiday Inn, Johnson City, TN

Holiday Inn, Johnson City, TN

This is the Holiday Inn, Johnson City, TN 2/25/23
Greeted with a smile and welcomed us. When we asked for a specific room, the front desk assistant said “We don’t usually put dogs in that room.” When we said we’d had that same room a week before, she stated “No problem. I am happy to get that room ready and let you stay there.” No fuss, no muss. It was a big room, the door was easy to open. Wide enough for the wheelchair to go through, and a roll in shower made it easy to get cleaned up.

Holiday Inn, Johnson City, TN

 

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Disabilities and The Starbucks Incident

Disabilities and The Starbucks Incident

The Starbucks Incident

Dr. Keith McNally served as a United States Marine in a combat situation – thus, he is a USMC Combat Veteran. By fortune, he does not have a service-related disability as others who have served in the United States Armed Services. This is not his story.

But this could be your story. Or the story of someone you know.

As reported…

An interesting statistic. According to the United States Census Bureau (source below), those who served (or are currently serving) in the United States Armed Forces since the 9/11/01 terrorist attacks in America have the highest rate of services-related disabilities. This comes to a staggering 1.5 million people.

Although the number of service-related fatalities has declined, the number of service-related injuries has increased. This means there are more veterans with service-related disabilities when comparing pre- and post-9/11.

Additionally, veterans who served since the terrorist attacks have a higher probability of incurring a service-related disability (the article is not clear on the reason for this occurrence).

Comparing the rate of service-related disabilities among Post-9/11 veteran statistics with other war and conflict situations:

  • Veterans Post-9/11: 43%
  • Veterans of the Gulf War: 27%
  • Veterans of the Vietnam Conflict: 16%

In this sense, a veteran is said to have a service-related disability if the individual incurred an injury or traumatic event while in service to his/her country. Although we typically consider this as obvious physical injury such as the loss of a limb or one of the five senses (sight, hearing, smell, touch, and taste), the disability or trauma could be psychological or psychiatric in nature. This includes cases where veterans incur symptoms associated with Post-Traumatic Stress Disorder (PTSD), Anxiety Disorder with Panic Attacks, and the like. Veterans with psychological and psychiatric disabilities are on the rise since the 9/11 terrorist attacks.

Source: https://www.census.gov/library/stories/2020/06/who-are-the-nations-veterans.html

On with the story…

A man was sitting in his vehicle at a local shopping area. His car sat in the second row of the parking lot facing the storefronts. It was mid-morning, Saturday, and he was on his cell phone. A large pickup truck pulled into a parking spot in front of him, to this left. It just so happened to be a spot dedicated to the disabled. The man driving the truck parked and got out of his vehicle.

Soon, the man was approached by another man, equal in height, but probably twice his size, most of that muscle. As the man in the vehicle watched, it was not long before he realized what was going on. He told the person on the other end of the cell phone conversation that he had to go. Exiting his own vehicle, he walked over to the two men by the pickup truck.

Sizing them up, the man who pulled into the parking spot was easily six feet tall. So was his confronter.

“What makes you think you can park in this spot?” the big man said. The man’s voice was angry, even to the point of bullying. It looked as if he was about to put his hands on the driver of the pickup truck when the man from the car arrived on the scene.

“Hello gentlemen,” the third man said. “How is everything this morning?”

“This man is parked illegally and needs to be taught a lesson,” the big man said. “I don’t see any handicap.”

The man from the car pulled out his badge and showed it to the two men. “I’ll take it from here,” the officer said.

The big man, still angry, was not easily persuaded to leave.

Validating Your Story

“I’ll take it from here,” the officer said again. He waited until the big man walked away.

“Thank you, officer,” said the man who drove the pickup truck.

“I am going to have to see your driver’s license and registration,” the officer said.

“What for?” the man said. “I didn’t do anything wrong.”

“Routine,” the officer said. “We have people in the area who carry these rearview mirror signs pretending to be disabled. I just want to make sure.”

“Does this look like I’m pretending?” the man said as he pulled up one of his pant legs. The man was showing the officer his prosthetic leg.

“Your license and registration please,” the officer said. “Just to be sure.”

The man climbed into his truck and dug for his registration in the glove compartment. Then he pulled his license from his wallet.

While the officer checked the validity of the driver’s credentials, the driver of the pickup grabbed his cell phone and made a call. When the officer returned, he asked the man to step out of his vehicle.

“Here you go,” the officer said, handing both the license and registration back. “Your bumper sticker reads Special Forces. Where were you stationed?”

“Fort Bragg, North Carolina,” the driver said.

“My cousin was stationed there,” the officer replied.

“Does everything check out?” the man asked.

“Absolutely,” the officer said. “But now I’m curious. How did it happen?”

“My leg?” the man asked. “That’s a story.”

You Are Not Alone

“I’m sure it is,” the officer said. “But I collect stories. You see, my cousin died. We were told it was a ‘training accident’. It might have been, but we’ll never know. Since then, I have been researching the people who have died in ‘training accidents’ while in service to our country. I have five stories so far. I would like to know your story if you have time.”

“Sure,” the man said. “Why not?”

“Great,” the officer said. “Let me buy you a coffee.”

On With Life

Disabilities are not always obvious. In fact, some are hidden in plain sight. When meeting someone for the first time, or even seeing someone over the course of years, you don’t know what they are dealing with or what they’ve been through. But it’s easy to paint a picture of them just by what you see. Often, that picture is wrong.

Invisible disabilities are just that – invisible. Someone has suffered something, but that something is not common knowledge. As the saying goes, don’t assume, and don’t judge.

And think before you speak.

Thanks for reading!

 

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Disabilities and The Starbucks Incident

 

 

 

 

 

 

Are You Invisible?

Are You Invisible?

Becoming Visible – the Invisible Warrior!

Are you invisible? 

If you live with chronic pain for whatever reason, and life seems to be fighting against you every step of the way, then you may be invisible. Being invisible means no one is there to help, support, and aid you because no one sees you. And no one sees your pain.

Millions of people live their invisible lives; millions of people live with chronic pain and disabilities. Many are discriminated against in ways with which you might not be familiar. Even though (Federal and State, USA) laws are there to protect those with disabilities, certain industries do not comply with such rules. Even worse, people discriminate against other people.

On Becoming Visible 

If you were to have a conversation with Nancy Becher, your heart would melt.

Talk with anyone with chronic pain, and they will tell you a story. Depending on how the individual copes with the pain daily, that story can have different endings. Most of the time, you will learn three things: when it all started, the complications that resulted, and the multitude of medical professionals who got involved. If you dig a bit deeper, you may also learn that doctors – i.e., medical professionals – may not always believe you.

You read that correctly – medical professionals may not believe your story.

Today, I will tell you about one such story.

Meet Nancy Becher

Nancy and I engage on LinkedIn regularly. As with most things, engagement was slow in the beginning. But I understood Nancy’s passion for others. I connected with her mission – let’s get the word out about those who suffer chronic pain. These people are often overlooked by medical professionals, especially when the source of the pain cannot be easily or readily identified.

Yes, there is an origin story. There is always a Genesis. There is always a point in history where we can say, “yes!” This is when it all started. But chronic pain? Can pain last beyond the healing? These are good questions. However, I do not know the answers. I only know the stories that people tell me.

This is One of Those Stories

“Hello, Nancy,” the doctor said. “What brings you in today?”

Nancy sits in her wheelchair in the doctor’s office. This is a new referral. This is the first meeting between Nancy and the medical professional. Due to struggles with insurance providers, Nancy faces the continual challenge of receiving the appropriate medical care for her needs.

“Doc,” Nancy begins. “I’m in pain.”

Nancy, once again, offers the medical professional a brief backstory and then tells him, “I have Complex Regional Pain Syndrome.”

“You’re lying,” the medical professional follows, “I have never heard of such a thing.”

People, such as Nancy Becher, who live with chronic pain face significant life challenges. Besides the internal struggles they face each day – literally wanting to get up and out of bed knowing that this day will be difficult to cope with emotionally, psychologically, and physically – people with invisible illnesses face socio-economic and other real-life struggles.

Looking back at the conversation with her doctor, how insulted would you feel if your medical professional told you that you were lying about your illness or condition? Surely, the conversation would go south from there. No need to explain the symptoms or problems. You first have to convince the doctor that you’re telling the truth.

Doctor, Meet Google

Let’s set the facts straight.

Complex Regional Pain Syndrome is “a chronic condition that causes long-lasting pain. Normally, pain is short-term and resolves as the body heals. But with this condition, pain doesn’t fade with time. Instead, ongoing pain might get worse instead of better as days and weeks pass.” ~ Hopkins Medicine

People with chronic pain and invisible illnesses embrace stigma, financial challenges, loneliness and isolation, and even suicidal thoughts and ideations on a regular basis. This is not quite the incentive you want to have waking up every morning.

Nancy’s Story

Nancy Becher is the founder of Invisible Warriors, a nonprofit organization focused on providing support and guidance for those who suffer from invisible illnesses. Additionally, she is on a mission to change the stigma associated with illness and disability. With the right support from her community, she also wants to change the way our (USA) federal government creates policies that help people with disabilities.

Nancy has a Master of Science degree in Counseling. Additionally, she is working toward her doctorate in Sociology. In 2022, she studied with Ministry with Disabilities. She is currently working toward her certification. She continues to exemplify the true nature of a life-long learner.

Her Life Changed in 2014

Picking up her parents from a senior center potluck dinner, Nancy was hit by a driver at the event. When the two cars collided, she was knocked from her vehicle, landing in a drainage ditch. Her body was twisted from the impact. As the ambulance came, Nancy could do nothing but writhe in pain and hope for the best. The best never came. No doctor could pinpoint any severe injuries aside from the cuts and scrapes associated with the impact on the ground. It took multiple doctors and many months before a medical professional had the insight to scan her body using an MRI (Magnetic Resonance Imaging).

Nancy was diagnosed with torn tendons, ligaments, and broken bones. This was five to six months after the fact, and by then, the permanent damage to her body had been done.

With surgery, some of the physical injuries were amended, but the pain continued. Eventually, a doctor diagnosed her with ‘Complex Regional Pain Syndrome’ from the prolonged nerve damage over those many months without proper medical care.

Often called the ‘suicide’ disorder, Nancy now faced new problems. How would she exist? What would she do now? How would she cope with the pain? What would prevent her from taking her own life?

Nancy was Determined to Live!

Since then, Nancy has undergone 16 surgeries and two spinal stimulators. She has met with countless medical professionals to find a way to deal with the pain. At this time, there is no solution. But there is hope.

Nancy organized and created Invisible Warriors, a 501c3 non-profit, to help others who are going through similar mental and physical journeys. It is her passion to support others while making it her mission to dialogue with medical professionals. Additionally, she continues to lobby for changes in the insurance, pharmaceutical, and travel industries so that women with hidden chronic and autoimmune disorders can begin to feel that they are not alone.

You are NOT invisible.

Thank you for reading!

Guest post by Dr. Keith McNally

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